It's been a while since I've blogged -- I've not been feeling really great and fighting depression but yesterday I found out about someone who has been down a much more difficult road than I. A friend of ours from church, Bert Klein, shared with us that he had lost his wife to Huntington's disease in 1995. Now, his daughter is dying from the same disease.
A new drug has been developed which shows great promise in the fight against this disease, which at this time has no cure. However, it will be years before it will be approved for human use. This will be too late for Bert's daughter, Hanna, who desperately needs a way NOW to fight against this horrific disease.
Bert has written to Oprah in hopes of getting the media's attention but for now their efforts are focused on a petition with www.change.org which is being circulated on Facebook where they hope to collect one million signatures. Then they will present the petition to the Canadian government to plead for Hanna's opportunity to take this drug now before the disease claims her life.
If you have a Facebook account, would you search for Hanna's Ride for Life and take the time to read about their situation and sign their petition. A few minutes may help to save a life.
Betty
6 comments:
Oh my Betty, that is so sad....I hope they are able to get the drug for her. And I hope you feel better too! Your card is lovely...it will make her feel better for sure.
You bet I will! Hope you are doing better. Your card is beautiful!
Betty
Hope things soon look up for you. So sad your friend is going through such difficult times.
Myrna
count me in!!! How sad, we can always look around and find someone worst off than we think we are. Prayers going up for you too!
Will do ...hope you are feeling better now
Glad you're home
Hugs!
Searched and joined. Hugs to you, Betty! I hope you are feeling better.
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